Sunday, January 30, 2011

from Bex to me to you

My daughter, Violet, is 5 years old and she has Cystic Fibrosis.

Cystic Fibrosis is a very rare genetic disease. So rare, in fact, that only 70,000 others in the entire world share this is common with her. Most of us live in towns and cities with more people than that. And most of these 70,000 are kids or young adults. It's just been in recent years – in our lifetime – that CF suffers have lived into adulthood and have an opportunity to choose what they want to be when they grow up.

CF, is so rare, that you can be certain that there will be no Jerry Lewis coming to the rescue with a national telethon to raise money and awareness for our cause. No pink ribbons, no race "for the cure"™, no celebrities answering your phone calls for donations, no Lance Armstrong to help us relate.

CF is a horribly high-maintenance disease. Its sufferers sit through countless treatments per day, swallow insane amounts of pills every day, endure procedures and surgeries that ultimately only put a band-aid on their ailments as the disease will just bring the issues right back again after time.

BUT THERE IS HOPE. There is. The Cystic Fibrosis Foundation is an amazing organization. It was founded, not by money-hungry corporations or pharmaceutical companies, but by families. Families who were touched by CF, and wouldn't let this rare disease beat them.. and with the hope that if we can have our tiny little CF suffers, like Violet, be the face of this nasty disease, that you might find it in your heart to help us out. The CF Foundation gives back 90 PERCENT of the money we raise BACK into helping find a cure. They don't fool around with our money. They have the same goal as we do. And they are closer than ever to finding a cure.

All we have is you. You are the only ones who can come to Violet's rescue.

I understand that these are hard times… but there is a way … and you can surprise yourself at how fast you can help us meet our goal. If you can donate, we are so grateful! But please, also join our team! Your donation can be the first in helping you reach your own goal for Team UltraViolet, or you can rely on others to help you meet your goal. As a member of our team, you can send out your own link. Just think, if you can get at least 10 people to donate as little as $10 each, then you're already at $100!!! And then you can set your goal higher if you feel inclined. There is no fee to join. No obligation to meet your goal. And no committment to show up at the walk, although we hope you do! So there is NO RISK to be a part of our team.

Please click here NOW!!! Donate or join our team! Please help us find a cure for Violet and all of those who suffer from CF:

If you have any questions at all, please do not hesitate to ask. I am available to anyone who wants to join our cause. Just shoot me an email.

please visit for the best, up-to-date, most trusted website regarding CF

Wednesday, January 5, 2011

On my way back home

I came in this way and here now I'll stay
If the unknown have to wait one more day
There's often times that it comes out wrong
But luckily I, I got a mind to know
On my way back home

Tuesday, January 4, 2011


the love of my life

and if i'm bored

i send vibrations, in your direction, from the satellite mind

Theo from Cleveland shoulda never got me started

is it ever gonna be enough?

Saturday, January 1, 2011

gone too soon

sending love to Frank & Amber on this awful day.